Well, I'm feeling really hip! I've made a page at CaringBridge about Per and our family.
Feel free to check it out.

Per\'s Web Page

Today is a very tough day. It's my day off, which usually means vegetating and relaxing, because my other day off is now a chemo day.

Overall, the chemo treatments are going very well. So that's awesome. However, Per is beginning to complain of more and more epigastric pain. It's not consistent, and doesn't seem to really distress him, but because he has terrible communication skills, it's impossible to get more out of him then pointing to his stomach and saying "hurt."

And, I think he's getting more anxious all the time, so even that could be part of the stomach issue. This morning he screamed like a crazy man when I tried to get him dressed, then hid behind a chair when his bus came. Frustrating, and makes me feel sad for him.

On the upside, we are about 1/8 of the way through our treatments. Yea! Per's tumor is so much smaller, and that is awesome. I can really pray now for a cure for him, because I believe it will happen. I just wish things would be simpler in the meantime.

Our chemo this week got postponed because ds's WBC counts are too low. This is discouraging, because his tumor has been shrinking and I have been feeling so hopeful about that.

So, my call schedule got rearranged (again) and we'll try again for next Friday.

It's just another reminder of how terribly toxic these medications are, and how they are cell-killers, not meant to be friendly to my son, but hopefully they will kill more cancer than good stuff.

Now we are about 1/4 of the way through this horrible chemotherapy treatment. Wow! I just realized that. We have one more overnight treatment before repeat scans and going to surgery.

My son really is oblivious to all that is going on. He doesn't mind his thrush and daily meds as much as an adult would, I'm sure. At dinner, he is always reminding us to pray for his "bump." You really can hardly feel it now.

My daughter is enjoying the perks of being a cancer sibling around Christmas time, with big fancy parties and presents being handed out by compassionate strangers on the oncology ward.

My husband and I are trying not to kill each other. Trying not to become a statistic. Trying to fight our way through to a stronger relationship, not a weaker one.

I'm trying to figure out how to peform all my roles as best I can: Wife, mother, doctor, friend, crazy person.

I think we're surviving. I'm glad to realize that we are probably 25% of the way to the end of this treatment. What's a teensy 32 more weeks!?
:boggled:

Merry Christmas!

For those who are interested, my son had his MRI repeated yesterday, and it showed an 88% reduction in the size of his cancer! It also showed that the tumor is not involving his sciatic nerve, so that is great.

We'll talk to the surgeon this Friday and then off to the OR next Tuesday.

God bless all of you. I cannot imagine ever going thru something like this. i hope , and pray your son recovers.

also, he is really cute,
mini

My son has his surgery, and the margins of the specimen were negative, yea! Last week we had our first modeling session for radiation, and our second is this wednesday. Then, this Thursday, we start the first of about 20 treatments, 5 days per week.

Once we're done with radiation, it will be back to weekly chemo until about August. So, that's terrific.

It took him a while to get started with walking again, but he's doing well now.

I found out last week my daughter is getting bullied at school by one of her "friends." So I got to focus on the other kid for a while!

It's been a little while since I have heard about your son. I saw that the surgery went well. How is he doing??