Surgery went well- I am in Peanut's room now watching her sleep. It has been very hard for DH to see her with all of the tubes and hardware- he literally turned white when he saw her (and he is pretty dark skinned, so I was afraid he was going to pass out). For me, it was handing my 11 day old baby over to the circulating nurse before surgery that rocked me to the core.
She will be sedated for the next week or so while they slowly move her jaw forward. I was amazed to find her laying on her back last night- something she hasn't been able to do at all to date! Obviously it is due to the vent right now, but the prospect of her being able to sit in her car seat, use her swing, etc. makes me feel as if there is a light at the end of this tunnel.
The hardest part for me now is when she is in pain- she turns all red and her brow gets all kinds of creases in it. It breaks my heart. It also hadn't occurred to me until yesterday that she will need to be tapered off of everything she is on for sedation and pain- but I would rather they go for her comfort than worry about how long it takes to taper her off of the meds once she is extubated.
Continued thoughts and prayers are appreciated- we are still working with one day at a time!
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The ultimate measure of a man is not where he stands in moments of comfort but where he stands at times of challenge and controversy - MLKJ