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Youngest Just Diagnosed With Scoliosis

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12 years 10 months ago #19633 by AnnaM
Hope the consult goes well. You might want to look at the newest issue of Reader's Digest. There's a story about a little girl who was born with severe scoliosis that was corrected by a new technique involving using an adjustable traction bar on the ribs. Pretty interesting. You might want to bring it along and ask the specialist what he knows about it. Good luck!

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12 years 9 months ago #19634 by DO1day
Thank you! I didn't read that article until today, but I will definitely mention it next time. They moved his consult up to last Friday, so we have met with the physician. The radiologist's official interpretation on his report states that the vertebrae cannot be visualized clearly, but they look normal. The new doc thinks my son's spinous processes are poorly formed and that he has spina bifida occulta. We are going for a spinal MRI tomorrow night for a definitive diagnosis and then followup next Tuesday with the new doc. I am getting the radiologist's transcribed reports, too, just in case.

He did tell us my son's angle of curvature is 51 degrees, which is in the surgical intervention range and surgery is "definitely down the road." The doc said he will be fitted for a brace he will have to wear pretty much continuously.

I'm hoping we caught the doc on a bad day, or maybe in wait-until-the-MRI-results mode. He was kind of short with us, so hopefully he's not like that on Tuesday. We'll find out more soon...at least we're a little closer to fixing the problem.

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12 years 9 months ago #19635 by DO1day
One last note: Hallelujah! The MRI cleared him of any other anomaly, including spina bifida, and surgery wasn't mentioned at today's consult--just back-bracing 24 hours/day, but we'll take it over surgery anyday....that and the peace that comes with answers! Thanks for listening everyone.

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12 years 9 months ago #19636 by amf77
So glad to hear this news!

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